Cardiovascular Disorders Additional Resources
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Pediheart
Explains the normal heart and how it is affected by disease in children.
http://www.pediheart.org/parents/
The Baby with Tetralogy of Fallot
Offers information for parents including brief explanation of the disorder, links and care of the baby awaiting surgery.
http://www.med.umich.edu/1libr/chheart/care04.htm
Children and Heart Disease
The normal heart, defects, heart murmurs, kawasaki disease, treatment, school programs and feeding an infant with congenital heart disease. Information provided by the American Heart Association.
http://www.americanheart.org/children/
Rush Children's Heart Center
Provides tutorials about cardiac disorders, diagnostic tests and the normal heart for health professionals, parents and children. Includes illustrations, animations and movie clips to aid learning.
http://www.rchc.rush.edu/
Little Hearts
Provides support and information to families of children with congenital heart disease. Offers useful links, parent matching, email groups and activities.
http://www.littlehearts.net/
Healing Your Child's Heart
General information for parents about heart surgery from the University of Chicago Children's Hospital. The procedure, the hospital stay, what to expect as your child recovers, and taking care of your child at home.
http://www.ucch.org/ucch/healthpages/cardio/HYCHeart.html
Hypoplastic Left Heart Syndrome
Parent's personal account of her child's illness and surgery. Includes links, diagrams and information about the condition and the Norwood surgery.
http://www.angelfire.com/ia2/mollyjoan/index.html
Carson's Heart Page
Dedicated to a child who had surgery for congenital disease.
http://members.tripod.com/carsonsheart/
Experience Journal - Pediatric Heart Disease
Features stories and personal experiences from families about what it's like to live with their children's heart disease.
http://experiencejournal.com/
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