Sickle Cell Additional Resources
Sickle Cell Society
A UK-based charity which provides care and information. Site includes research findings, pain management techniques, and teaching resources.
http://www.sicklecellsociety.org/
Joint Center for Sickle Cell and Thalassemic Disorders
Gives an evaluation of the causes and treatments of sickle cell disease as well as current research. Information is available both for lay persons as well as health care providers.
http://sickle.bwh.harvard.edu
Sickle Cell Disease Association of America
Education, advocacy and other initiatives which promote awareness and support for sickle cell programs and patients.
http://sicklecelldisease.org/
The American Sickle Cell Anemia Association
A non-profit organisation based in Cleveland Ohio whose objectives are to raise awareness of the condition. Features educational material, FAQs, support groups and a message board.
http://www.ascaa.org/
Sickle Cell Disease: Practical Tips for Preventing a Sickle Cell Crisis
Advice from FamilyDoctor.org.
http://familydoctor.org/550.xml
Adam.com: Sickle Cell Anemia
Takes a look at this disorder with a definition, causes, incidence and risk factors.
http://www.nlm.nih.gov/medlineplus/ency/article/000527.htm
Hertz Nazaire - Sickle Cell Patient Information
A comprehensive, patient run sickle cell information site. The information is presented from the patient's point of view. There are discussion boards, links, and art.
http://members.tripod.com/nazaire1/
Sickle Cell Advocates for Research and Empowerment (S. C.A. R.E. )
Patient-oriented information.
http://www.defiers.com
Sickle Cell Disease: Information for Health Professionals
Basic facts, symptoms, how to recognise a crisis, diagnosis and management are some of the topics covered.
http://www.sicklecellsociety.org/education/healthpr.htm
Unit for the Social Study of Thalassaemia and Sickle Cell
A UK based social studies site for thalassaemia and sickle cell, including bibliography, quiz, and links to other major sites.
http://www.tascunit.com/