Chronic Illness Additional Resources
Chronic Disease Prevention - Overview
National Center (U.S.) describes statistics, (state) programs, risk surveillance, risk factors per state, accomplishments, and publications.
http://www.cdc.gov/nccdphp/overview.htm
Preventing Chronic Disease: Public Health Research, Practice and Policy
On line Public Health Research peer-reviewed Journal by the National Center for Chronic Disease Prevention and Health Promotion in the United States. Contains essays, original research, special topics, case studies. Also available as PDF.
http://www.cdc.gov/pcd/
Self-Management Programs - Stanford Patient Education Research Center
Center develops, evaluates, and disseminates community-based, peer-led, self-management programs for people with all kinds of chronic diseases. Part of School of Medicine, California.
http://patienteducation.stanford.edu/programs/
Expert Patients Programme for Long-term Patients
Self-management course for confidence, skills and knowledge to manage chronic health conditions. Provides newsletter, explanation of program, people's views.
http://www.expertpatients.nhs.uk/
Preventing Disability in the Elderly With Chronic Disease
Discusses outcome of patient self management program. Education and lifestyle changes improve health, preserve functions and reduce costs. Also in PDF (published in 2002).
http://www.ahcpr.gov/research/elderdis.htm
Guidance for People Facing Serious Illness
Handbook for mortals gives short, practical advice how to handle serious illness and dying.
http://www.mywhatever.com/cifwriter/library/mortals/mor0.html
Center for Research on Chronic Illness, Carolina School of Nursing
Current research, pilot projects, publications on specific diseases as well as in general on preventing and managing chronic illness in vulnarable people.
http://nursing.unc.edu/crci/
Coping with Chronic Illness - for Counselors
Short explanation of defense mechanisms or coping styles to counselors of patients.
http://www.brandeis.edu/pcc/coping.html
Illness, Disability and Social Inclusion by Eurofound
Overview of social barriers for people with illness and evaluation of relevant European policies (education, social security, employment, anti-discrimination, independency) by European Foundation for the Improvement of Living and Working Conditions (170 p
http://www.eurofound.eu.int/publications/files/EF0335EN.pdf
Chronic Care Model
Promoting productive interaction between patient and care givers: essential elements are the community, the health system, self-management support, delivery system design, decision support and clinical information systems.
http://www.improvingchroniccare.org/change/model/components.html