Batten
Additional Resources
Batten Disease Family AssociationInformation about the BDFA, which provides supportive, informative, networking for the families, carers and professional giving care to children and adults with this disease in the United Kingdom.
http://www.bdfauk.freeserve.co.uk/
Batten Disease Support and Research Association
BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
http://www.bdsra.org/