Ectodermal Dysplasia
Additional Resources
National Foundation for Ectodermal DysplasiaED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
http://www.nfed.org/
Ectodermal Dysplasia Society
Information about the organization as well as the ED condition. Includes links, news articles and contact details.
http://www.ectodermaldysplasia.org/