Von Hippel-Lindau
Additional Resources
Von Hippel-Lindau Family AllianceInformation about the organization and the disease. Includes FAQs, newsletter, handbook, meeting schedules and support group data.
http://www.vhl.org/
Radiology: Von Hippel Lindau Disease
Genetic, clinical and imaging features from the NIH.
http://www.cc.nih.gov/ccc/papers/vonhip/toc.html